MS Support Meeting Minutes
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5/15/07
We had our May monthly meeting, and it was decided that we would try to shoot for an October Walk... I'm looking
into the logistics and protocol with the powers that be and will hopefully have the info to share for an update at
next month's meeting. We had some great ideas and participation from the members, and a fun meeting.
Thanks to everyone who showed up! See you next time, and ... stay cool! :)
We had our May monthly meeting, and it was decided that we would try to shoot for an October Walk... I'm looking
into the logistics and protocol with the powers that be and will hopefully have the info to share for an update at
next month's meeting. We had some great ideas and participation from the members, and a fun meeting.
Thanks to everyone who showed up! See you next time, and ... stay cool! :)
Also, here is the information from our April meeting regarding the Aquatics with Barb Batson. If I'm not mistaken,
I believe she said she was from Chattanooga, but she also said, if there was enough interest in the area, she
could work with Nashvill NMSS to set up a class in the area. Just click on the thumbnail document
below:
I believe she said she was from Chattanooga, but she also said, if there was enough interest in the area, she
could work with Nashvill NMSS to set up a class in the area. Just click on the thumbnail document
below:
9/5/07
Guess I've slacked off on updating these meeting notes, huh? Bad group leader!!! :) Anyway, we had
discussed in June and July the possibilities of the October Walk, but it was the general consensus that we don't
have enough people and the people we do have don't have the time or energy! to put this all together... so we'll
just continue to support whatever Walks are locally given, and put our thinking caps back on the next time an
opportunity comes up for us to help!
8/13/07
For the August meeting, we had decided to meet at Ken & Vickie's house outside Fayetteville for a change of
scenery to "close out" the summer... Thanks again for their wonderful hospitality, for Vickie's dulcimer music! :)
and Ken's great, yummy, grilled chicken!!! We'll be meeting in September back at Western Sizzlin' on Monday,
the 10th. Hope to see you then!
Guess I've slacked off on updating these meeting notes, huh? Bad group leader!!! :) Anyway, we had
discussed in June and July the possibilities of the October Walk, but it was the general consensus that we don't
have enough people and the people we do have don't have the time or energy! to put this all together... so we'll
just continue to support whatever Walks are locally given, and put our thinking caps back on the next time an
opportunity comes up for us to help!
8/13/07
For the August meeting, we had decided to meet at Ken & Vickie's house outside Fayetteville for a change of
scenery to "close out" the summer... Thanks again for their wonderful hospitality, for Vickie's dulcimer music! :)
and Ken's great, yummy, grilled chicken!!! We'll be meeting in September back at Western Sizzlin' on Monday,
the 10th. Hope to see you then!
| Join the movement! Stop MS before it Stops Us! Thanks for the visit! |
10/8/07
Our October meeting was small but productive! Met a new friend, Marie from Fayetteville! And through her
suggestion, I'm going to start posting whatever information we can find on this page for affordable housing in the
area for the handicapped... when you have MS, sometimes it's not so easy to maneuver stairs or regular
bathrooms... this info might help to find alternatives!
In our discussions, we realize that it's very confusing as to exactly what the colors of MS are these days... so my
mission for next meeting: to get the definitive answer!
Our October meeting was small but productive! Met a new friend, Marie from Fayetteville! And through her
suggestion, I'm going to start posting whatever information we can find on this page for affordable housing in the
area for the handicapped... when you have MS, sometimes it's not so easy to maneuver stairs or regular
bathrooms... this info might help to find alternatives!
In our discussions, we realize that it's very confusing as to exactly what the colors of MS are these days... so my
mission for next meeting: to get the definitive answer!
11/12/07
Such a lovely meeting we had! Surprised by Suzie and newcomer Pat, and returning "veteran" Marie!!!! Jane
and I were so happy to have you there!!!! Lots of great discussion and commiserations and laughs -- I know I
sure felt better! :) Anyway, we also decided a few other things as well:
Such a lovely meeting we had! Surprised by Suzie and newcomer Pat, and returning "veteran" Marie!!!! Jane
and I were so happy to have you there!!!! Lots of great discussion and commiserations and laughs -- I know I
sure felt better! :) Anyway, we also decided a few other things as well:
- We will continue in to have our meeting at the Western Sizzlin back room (as long as they'll have us!) ;)
- We will have a Holiday "Party" for our December meeting on Monday, December 10th! We hope to have
music, games and some MS trivia with prizes to be had! :) :) :) We're gonna make it fun! - I'll be sending out info to all "members" but welcome any and all with MS to the fray!! That goes for MS
caregivers as well... we certainly know how much you go through sometimes too... if you need some
support -- we're here for you too!
12/10/07
Our "Holiday Party" meeting was lots of fun! With what has now become the new core of our membership, we
had a blast just yakking it up over lunch, catching up and talking about plans for the new year! Thanks to Jane,
Vicki, Ken, and Marie for keeping the faith! :)
We will be here for anyone with MS or who cares for someone with MS who needs a sounding board or just a
place to feel not so alone! Every 2nd Monday of every month...
All best wishes for a Happy and Healthy 2008! See you on Monday, January 14th!
Our "Holiday Party" meeting was lots of fun! With what has now become the new core of our membership, we
had a blast just yakking it up over lunch, catching up and talking about plans for the new year! Thanks to Jane,
Vicki, Ken, and Marie for keeping the faith! :)
We will be here for anyone with MS or who cares for someone with MS who needs a sounding board or just a
place to feel not so alone! Every 2nd Monday of every month...
All best wishes for a Happy and Healthy 2008! See you on Monday, January 14th!
1/14/08
The first meeting of the New Year was small but sweet! :) We not only discussed our respective holiday
experiences, but we decided that an MS fundraising event that our group might be able to handle is the "Stand
for MS" lemonade stand idea... :) I will be looking into the specifics for us.
The first meeting of the New Year was small but sweet! :) We not only discussed our respective holiday
experiences, but we decided that an MS fundraising event that our group might be able to handle is the "Stand
for MS" lemonade stand idea... :) I will be looking into the specifics for us.
2/11/08
A big welcome back to our founding member, Mr. Roy! So great to see him!!! We know he can't make it all the
time, so it was a nice surprise and a pleasure to have his company at our February meeting. And a wish for a
speedy recovery goes out to Ms. Jane... don't let the flu bug get you down, girl! We ate a bite of cobbler for ya!
:)
Next meeting I hope to have more info on the lemonade "Stand for MS" and where we might be able to hold
those here in Tullahoma. Any ideas in that regard, please feel free to send me an email on the subject! :)
We hope to see Ms. Marie then and also any new members from the Dechard area that might want to drop by
(hint, hint) :) :) :) We will be meeting on Monday, March 10th (see Marie -- I got it right this time! :) :)
A big welcome back to our founding member, Mr. Roy! So great to see him!!! We know he can't make it all the
time, so it was a nice surprise and a pleasure to have his company at our February meeting. And a wish for a
speedy recovery goes out to Ms. Jane... don't let the flu bug get you down, girl! We ate a bite of cobbler for ya!
:)
Next meeting I hope to have more info on the lemonade "Stand for MS" and where we might be able to hold
those here in Tullahoma. Any ideas in that regard, please feel free to send me an email on the subject! :)
We hope to see Ms. Marie then and also any new members from the Dechard area that might want to drop by
(hint, hint) :) :) :) We will be meeting on Monday, March 10th (see Marie -- I got it right this time! :) :)
3/10/08
Our meeting for March was our "core four"! :) We decided to keep our eyes and ears open for opportunities in
the upcoming months for local events that might lend themselves to our having a "Stand for MS" lemonade
stand fundraiser event... any ideas in that regard, please don't hesitate to contact me.
We also agreed to have our April meeting "On the Mountain"! So the April meeting of the self-help group will be
held at Ken & Vicki's place in Mulberry, TN (outside Fayettsville). For more information please contact me. It
will be beautiful up on the mountainside in the Spring!!! And Ken says he'll be cooking pork tenderloin!!! Yum!
We had a great time the last time we held our meeting at our "annex"! It will be another relaxing and fun day
away! Come and join us!!
Our meeting for March was our "core four"! :) We decided to keep our eyes and ears open for opportunities in
the upcoming months for local events that might lend themselves to our having a "Stand for MS" lemonade
stand fundraiser event... any ideas in that regard, please don't hesitate to contact me.
We also agreed to have our April meeting "On the Mountain"! So the April meeting of the self-help group will be
held at Ken & Vicki's place in Mulberry, TN (outside Fayettsville). For more information please contact me. It
will be beautiful up on the mountainside in the Spring!!! And Ken says he'll be cooking pork tenderloin!!! Yum!
We had a great time the last time we held our meeting at our "annex"! It will be another relaxing and fun day
away! Come and join us!!
4/14/08
The April meeting at "the annex" :) was wonderful! Big thanks to Ken & Vicki for hosting us at their mountain
retreat of a beautiful home! The pork rotisserie was a dream, the fresh cole slaw was to die for, and the 5
minutes we ventured out onto the front porch -- tho' brisk -- was breathtaking! :) Thanks again!!
Next meeting will be same bat time, same bat channel -- back in Tullahoma at the Western Sizzlin', back room -
on Monday, May 12th. Hope to see you there!
The April meeting at "the annex" :) was wonderful! Big thanks to Ken & Vicki for hosting us at their mountain
retreat of a beautiful home! The pork rotisserie was a dream, the fresh cole slaw was to die for, and the 5
minutes we ventured out onto the front porch -- tho' brisk -- was breathtaking! :) Thanks again!!
Next meeting will be same bat time, same bat channel -- back in Tullahoma at the Western Sizzlin', back room -
on Monday, May 12th. Hope to see you there!
7/14/08
WELL! It looks like I've been a little lax in my updates here!!!! I could have sworn!!!! I'd at LEAST done May... oh
well... time and things do get away from us, don't they??? :)
So sorry about that. But here's the scoop! Our July meeting went very well, with our core 3 ladies from the "study
group" (see May's notes coming up!) were in attendance and we had lots to talk about. Poor Jane suffered an
episode of mixing up her daytime and nighttime meds while she was alone and falling to the floor! She wasn't hurt
thank goodness, but was basically paralyzed on the floor for more than 2 hours, not being able to get help. Which
brings me to our discussion of Life Alert. In some cases, if you spend a lot of time alone, this may be something
you need. Here's the website where you can find more information: http://www.lifealert.net/home/home.html
I'll give you the highlights as best I can remember of our May and June meetings:
May -- Jane, Susie and I participated for 1 week in May gathering data for an MS study being done by a student at
MTSU. We had to wear pedometers and electrometers and write down our steps and if or when we used assisting
devices when we walked. It was easy enough, although we found the pedometers popping off our belts sometimes...
Anyway, we're hoping to hear about the study, and when it's ready, I'll make it available on this site.
Also in May, we followed up on our Stand Against MS lemonade stand fundraising idea. We received our 2 banners,
so we are more prepared to do something formally. However, it was decided that since there are just a couple of us,
and we would need to worry about table, chairs, possibly an umbrella, coolers, ice, cups, not to mention the
lemonade... that the output $$ would be formidable. We don't really have a budget to deal yet. Possibly later, or if a
situation presents itself where some of these things are taken care of, we could handle it. We'll keep our options
open, but for now --- it's on the back burner.
June -- We met some folks from Manchester, TN and hope we will be seeing more of them! Scott and Tina came to
our meeting since the Manchester group has disbanded. Both are Betaseron users, which is good to know, since
Vicki is our only member who uses Betaseron -- so now she's not so alone!!! :) For anyone out there in the
Manchester area... if you would like to attend our Tullahoma meeting, PLEASE DO! :) Consider this your personal
invitation to join our ranks!! Contact me by email at kmmartin_7@yahoo.com or just come on by to one of our
meetings -- The 2nd Monday of every month, back room, Western Sizzlin', North Jackson Street, Tullahoma! We
look forward to meeting YOU!
WELL! It looks like I've been a little lax in my updates here!!!! I could have sworn!!!! I'd at LEAST done May... oh
well... time and things do get away from us, don't they??? :)
So sorry about that. But here's the scoop! Our July meeting went very well, with our core 3 ladies from the "study
group" (see May's notes coming up!) were in attendance and we had lots to talk about. Poor Jane suffered an
episode of mixing up her daytime and nighttime meds while she was alone and falling to the floor! She wasn't hurt
thank goodness, but was basically paralyzed on the floor for more than 2 hours, not being able to get help. Which
brings me to our discussion of Life Alert. In some cases, if you spend a lot of time alone, this may be something
you need. Here's the website where you can find more information: http://www.lifealert.net/home/home.html
I'll give you the highlights as best I can remember of our May and June meetings:
May -- Jane, Susie and I participated for 1 week in May gathering data for an MS study being done by a student at
MTSU. We had to wear pedometers and electrometers and write down our steps and if or when we used assisting
devices when we walked. It was easy enough, although we found the pedometers popping off our belts sometimes...
Anyway, we're hoping to hear about the study, and when it's ready, I'll make it available on this site.
Also in May, we followed up on our Stand Against MS lemonade stand fundraising idea. We received our 2 banners,
so we are more prepared to do something formally. However, it was decided that since there are just a couple of us,
and we would need to worry about table, chairs, possibly an umbrella, coolers, ice, cups, not to mention the
lemonade... that the output $$ would be formidable. We don't really have a budget to deal yet. Possibly later, or if a
situation presents itself where some of these things are taken care of, we could handle it. We'll keep our options
open, but for now --- it's on the back burner.
June -- We met some folks from Manchester, TN and hope we will be seeing more of them! Scott and Tina came to
our meeting since the Manchester group has disbanded. Both are Betaseron users, which is good to know, since
Vicki is our only member who uses Betaseron -- so now she's not so alone!!! :) For anyone out there in the
Manchester area... if you would like to attend our Tullahoma meeting, PLEASE DO! :) Consider this your personal
invitation to join our ranks!! Contact me by email at kmmartin_7@yahoo.com or just come on by to one of our
meetings -- The 2nd Monday of every month, back room, Western Sizzlin', North Jackson Street, Tullahoma! We
look forward to meeting YOU!
08/11/08
Our August meeting was small but very good! We welcomed a new member, Jerry - and hope to see him from now on
as he's right here in Tullahoma!
Just a reminder - our meetings are open to anyone in the Tullahoma area -- but those of you in Manchester or any
other surrounding towns are welcome as well! We're here for you!! If you need to connect with other people who
know what you're going through, this is the place for you! Plus, there is absolutely no pressure here at all. We're here
for informational purposes, for vent sessions :) and to have a good time!! :) :) :) Which is what we all pretty much
need. AND if you need any specific MS information, and we don't have it on hand, we can get it for you! So come and
join us.
Our next meeting will be the 2nd Monday in September, which is Sept. 8th at 11AM at the Western Sizzlin' in
Tullahoma. You are welcome to just pop in and say hey! or contact me first if you would like, either by phone or by
email. I'm happy to help.
(Kathy Martin * 931-455-3568 * kmmartin_7@yahoo.com)
Our August meeting was small but very good! We welcomed a new member, Jerry - and hope to see him from now on
as he's right here in Tullahoma!
Just a reminder - our meetings are open to anyone in the Tullahoma area -- but those of you in Manchester or any
other surrounding towns are welcome as well! We're here for you!! If you need to connect with other people who
know what you're going through, this is the place for you! Plus, there is absolutely no pressure here at all. We're here
for informational purposes, for vent sessions :) and to have a good time!! :) :) :) Which is what we all pretty much
need. AND if you need any specific MS information, and we don't have it on hand, we can get it for you! So come and
join us.
Our next meeting will be the 2nd Monday in September, which is Sept. 8th at 11AM at the Western Sizzlin' in
Tullahoma. You are welcome to just pop in and say hey! or contact me first if you would like, either by phone or by
email. I'm happy to help.
(Kathy Martin * 931-455-3568 * kmmartin_7@yahoo.com)
09/08/08 - Ok. I know I said I'd be better about this... but sometimes the time just slips away... :( Sorry I haven't
updated in a while. But here's the scoop of September's meeting as best as I can remember it at this point! :)
As I recall, there were the 4 of us... me, Jane, Vicki & Ken. But we had a great meeting, and caught up -- talked
about a lot. Scott had arranged to meet me ahead of time to give me extra Betaseron that he had that I could give
to Vicki. See... this is why it's so great we can network and connect. Those shots are expensive! And if someone
has some that they either don't need or can't use anymore for whatever reason, and the meds are still good --
DON'T WASTE THEM! See if someone else can use them!!! Because chances are -- they can!
We came up with an easier way to do our "Lemonade Stand" idea, since none of use could face pulling out all the
tables & chairs and hauling ice and cups and coolers etc it would take to actually sell lemonade. If we pre-make little
attachments for bottled water, we can give out CrystalLite-type singles to make their own lemonade along with a little
logoed card. We charge $2. It's for the cause. It could work! :)
And then we ate! :) What else would we do?? October's meeting will be Monday the 13th! It will be a Halloween
theme... :) Boo! And, I have news from the MS-Learn-On-Line front! So... Please come and join us!
updated in a while. But here's the scoop of September's meeting as best as I can remember it at this point! :)
As I recall, there were the 4 of us... me, Jane, Vicki & Ken. But we had a great meeting, and caught up -- talked
about a lot. Scott had arranged to meet me ahead of time to give me extra Betaseron that he had that I could give
to Vicki. See... this is why it's so great we can network and connect. Those shots are expensive! And if someone
has some that they either don't need or can't use anymore for whatever reason, and the meds are still good --
DON'T WASTE THEM! See if someone else can use them!!! Because chances are -- they can!
We came up with an easier way to do our "Lemonade Stand" idea, since none of use could face pulling out all the
tables & chairs and hauling ice and cups and coolers etc it would take to actually sell lemonade. If we pre-make little
attachments for bottled water, we can give out CrystalLite-type singles to make their own lemonade along with a little
logoed card. We charge $2. It's for the cause. It could work! :)
And then we ate! :) What else would we do?? October's meeting will be Monday the 13th! It will be a Halloween
theme... :) Boo! And, I have news from the MS-Learn-On-Line front! So... Please come and join us!
10/13/08 - We had a good meeting for October. I had anticipated two more members showing up than did... but our
core 4 had a good talk and went over the materials about Cognitive Thought. Anyone interested in taking a look at
the MS Learn On-Line course, I have it on CD. Let me know.
I was contacted by Meredith at the MidSouth Chapter, and in November, we will host a representative from Pfizer
and Dr. Raymond Capps, a neurologist from Tullahoma. (see the flyer below) Please join us for our November
meeting. Here is a great opportunity to have your questions answered by an expert!
core 4 had a good talk and went over the materials about Cognitive Thought. Anyone interested in taking a look at
the MS Learn On-Line course, I have it on CD. Let me know.
I was contacted by Meredith at the MidSouth Chapter, and in November, we will host a representative from Pfizer
and Dr. Raymond Capps, a neurologist from Tullahoma. (see the flyer below) Please join us for our November
meeting. Here is a great opportunity to have your questions answered by an expert!
11/10/08 - Dr. Raymond Capps and Reps from Pfizer and the Midsouth Chapter came to visit... we were greatly
appreciative of their gracious expertise! Dr. Capps gave us a wonderful computerized presentation and patiently
answered all our questions. If YOU had been there, he would have answered YOUR questions too! :) See what you
missed? Dr. Capps said he would be happy to come back any time and give us another presentation, so you may
have another chance in the coming months... don't pass us the opportunity to get your information straight from an
expert!!!
December meeting will be on Monday, December 8th, 2008. Ornaments may be involved... :)
appreciative of their gracious expertise! Dr. Capps gave us a wonderful computerized presentation and patiently
answered all our questions. If YOU had been there, he would have answered YOUR questions too! :) See what you
missed? Dr. Capps said he would be happy to come back any time and give us another presentation, so you may
have another chance in the coming months... don't pass us the opportunity to get your information straight from an
expert!!!
December meeting will be on Monday, December 8th, 2008. Ornaments may be involved... :)
Here is where you can read past meeting minutes... a way to free up the main page! :)
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